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New York City Seal Press Release

New York City Department of Health
and Mental Hygiene

Office of Communications
FOR IMMEDIATE RELEASE
CONTACT: Sandra Mullin/Sid Dinsay
Business Hours (212) 788-5290
After Business Hours (212) 764-7667
Tuesday, March 2, 2004
 

WORLD TRADE CENTER HEALTH REGISTRY SURPASSES 25,000 REGISTRANTS

Becomes the Second Largest Health Registry in American History

NEW YORK CITY, MARCH 2 – This weekend saw the 25,000th person to enroll in the World Trade Center Health Registry, with six months left for other eligible participants to sign up. The Registry is now the second largest effort of its kind in U.S. history, just behind the Three-Mile Island Registry that began in 1979. As of yesterday, 25,029 persons have enrolled – meaning they've completed a 30-minute phone interview with Registry staff. The registration period opened in September 2003 and is scheduled to end this August.

"We are pleased with the response to the World Trade Center Health Registry," said Dr. Thomas R. Frieden, Commissioner of the New York City Department of Health and Mental Hygiene (DOHMH). "The data gathered through the Registry allow us to better understand how the events of 9/11/01 affected the health – both mental and physical – of those directly exposed to the dust and debris cloud from the collapse of the Twin Towers. Still, we would like to see thousands more sign up for this critical initiative."

Registry staff continue their outreach efforts to help persons enroll, including setting up information tables and making presentations at businesses, schools and residential buildings. In addition, the World Trade Center Health Registry Community Advisory Board (CAB), a panel that comprises representatives of the various groups directly exposed to the environmental effects of 9/11/01, will hold its second meeting later this month. The CAB will continue to work with Registry staff on determining the most effective methods of public outreach for, and promotion of the Registry.

Who Should Enroll in the World Trade Center Health Registry

Thousands of people from each of the five boroughs, the greater New York metropolitan area, and throughout the country are eligible to enroll in the WTC Health Registry. Those in any one or more of the following categories should enroll:

  • People who were in a building, on the street, or on the subway south of Chambers Street on 9/11/01;
  • People who were involved in rescue, recovery, clean up or other activities at the WTC site* and/or the WTC Recovery Operations on Staten Island any time between 9/11/01 and 6/30/02;
  • School children & staff at schools (pre-K through 12) or day care centers south of Canal Street on 9/11/01;
  • People who were living south of Canal Street on 9/11/01.

* The WTC site is bounded by Chambers Street, Broadway, Rector Street and the Hudson River.

These groups do not include all those who were exposed to the fumes, smoke, and dust. However, they do ensure a wide range of all possible types of exposure. The data from the Registry will provide vital information to everyone exposed about the occurrence of health effects, and the rate of and exposures related to any health effects that are found.

Those who enroll in the WTC Health Registry are asked to complete a 30-minute telephone survey including questions on where they were on September 11, 2001, how long they were in areas with smoke and fumes, and whether they have had any health problems since. Registrants will be periodically contacted to answer questions about any health changes. This information will then be compared with that of the general population to identify any health problems possibly linked to 9/11. Ultimately, findings drawn from the health registry will enable researchers to observe patterns that may be invisible to individual physicians. All information given will be kept strictly private and confidential. No medical examinations or tests are required.

The WTC Health Registry is a collaborative effort between DOHMH and the federal Agency for Toxic Substances and Disease Registry (ATSDR), with funding provided by the Federal Emergency Management Agency (FEMA).

To find out more about the World Trade Center Health Registry or to enroll, call toll-free, 1-(866) NYC-WTCR (1-866-692-9827). People can also log on to wtcregistry.org, or call 311 (in New York City) and ask for more information about the Registry.

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