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New York City Seal Press Release

New York City Department of Health
and Mental Hygiene

Office of Communications
FOR IMMEDIATE RELEASE
CONTACT: Sandra Mullin/Sid Dinsay
Business Hours (212) 788-5290
After Business Hours (212) 764-7667
Thursday, June 17, 2004
 

WORLD TRADE CENTER HEALTH REGISTRY SURPASSES 40,000 ENROLLEES; IT IS NOW THE LARGEST REGISTRY OF ITS KIND IN U.S. HISTORY

Only Ten More Weeks Until the End of Registration Period

NEW YORK CITY, JUNE 17 – Over 40,000 people have signed up in the World Trade Center Health Registry to date, with only ten weeks to go until the end of the enrollment period. In the process, the Registry has become the largest public health registry of its kind in U.S. history, surpassing the Three Mile Island project started in 1979. The New York City Department of Health and Mental Hygiene (DOHMH) recently launched the final phase of a public awareness campaign – featuring a subway campaign, print and radio ads – aimed at increasing public awareness and registration, especially among residents and students in grades pre-k through 12.

Through June 15th, 41,080 persons enrolled in the Registry by completing a 30-minute phone interview with Registry staff. The registration period opened in September 2003 and is scheduled to end this August.

Registry staff have stepped up outreach efforts to help people enroll, making presentations at street fairs, residential buildings, businesses and schools; the Health Department also conducted in-person enrollment sessions in Chinatown. Additionally, the World Trade Center Health Registry Community Advisory Board (CAB), a panel that comprises representatives of groups directly exposed to the environmental effects of 9/11/01 is assisting with efforts to strategically promote the Registry.

Who Should Enroll in the World Trade Center Health Registry

Thousands of people from each of the five boroughs, the greater New York metropolitan area, and throughout the country are eligible to enroll in the WTC Health Registry. Those in any one or more of the following categories should enroll:

  • People who were in a building, on the street, or on the subway south of Chambers Street on 9/11/01;
  • People who were involved in rescue, recovery, clean up or other activities at the WTC site* and/or the WTC Recovery Operations on Staten Island any time between 9/11/01 and 6/30/02;
  • School children & staff enrolled at schools (pre-K through 12) or day care centers south of Canal Street on 9/11/01;
  • People who were living south of Canal Street on 9/11/01.

* The WTC site is bounded by Chambers Street, Broadway, Rector Street and the Hudson River.

The data from the Registry will provide vital information about the occurrence of any health effects for all people who may have been exposed to the fumes, smoke and dust, even if they do not meet eligibility criteria.

Those who enroll in the WTC Health Registry are asked to complete a 30-minute telephone survey including questions on where they were on September 11, 2001, how long they were in areas with smoke and fumes, and whether they have had any health problems since. Registrants will be periodically contacted to answer questions about any health changes. This information will then be compared with that of the general population to identify any health problems possibly linked to 9/11. Ultimately, findings drawn from the health registry will enable researchers to observe patterns that may be invisible to individual physicians. All information given will be kept strictly private and confidential. No medical examinations or tests are required.

The WTC Health Registry is a collaborative effort between DOHMH and the federal Agency for Toxic Substances and Disease Registry (ATSDR), with funding provided by the Federal Emergency Management Agency (FEMA).

To find out more about the World Trade Center Health Registry or to enroll, call toll-free, 1-(866) NYC-WTCR (1-866-692-9827) or 311 (in New York City). People can also log on to wtcregistry.org, or call 311 to ask for more information about the Registry.

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